Join the PGC


Join the PGC

To join the PGC, the first way is to join a group that is already a part of the PGC at your institution or in your professional network. The second way is share GWAS data on cases and controls for one of the PGC disorders. Each group makes its own determination on the minimum number of samples an individual or organization can contribute. The best approach is to contact the working group chair to find out the group's policies about sample size contributions. 

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WCPG 2022, PGC General Meeting
WCPG 2022, PGC General Meeting

Contributing your data to the PGC

By community request, the PGC Coordinating Committee, Data Access Committee, and representatives from each workgroup have worked together to develop a protocol and online system to welcome new PGC collaborators and streamline the entry of new data into the PGC.

The goals of this system are to:

  • Create a transparent and efficient platform to group this remarkable collaboration.
  • expedite the addition of new PGC datasets, and
  • systematize the upfront collection of meta-data to facilitate subsequent manuscript preparations.

Mr. Donald Hucks serves as the PGC Data Intake Officer (DIO). The DIO is a member of the DAC and DRC. The DIO works closely with each PGC workgroup to help orient new members to the structure of the PGC and facilitate the deposition of new datasets.

To accomplish the goals set forth by the PGC community, we have created a two-phase protocol for new members including an "Inquiry Phase" and an "Intake Phase".

Inquiry Phase (~5 min):

You will be asked to provide a few key pieces of information that will help the PGC workgroup determine whether your data can be utilized. On rare occasions, there may be datasets that can not be included in a PGC analysis. The inquiry phase is designed to identify those datasets before you spend a significant amount of time during the intake process.

Intake Phase (~25-30 min):

During this phase you will be asked to provide more details about the datasets you are sharing including the information about the composition of the sample, any data sharing restrictions, and summary information that is often required for manuscript preparation. If you have questions at any time, you may contact the DIO for help. You will receive a link to the Data Intake Form when your Data Inquiry Form is approved by the relevant PGC workgroup(s).


Please review the workflow below, which breaks down the steps embedded into each phase:

PGC DRC Data Intake Workflow - 2023-07-21