Data Access Committee
The PGC Data Access Committee (DAC) includes representatives from each workgroup, an administrative assistant, dataset coordinators, three co-chairs, and ex-officio member, Dr. Patrick Sullivan.
The goal of the DAC is to develop and maintain simple and efficient procedures for PGC investigators to access PGC data. The DAC is not a permission granting body. Instead it serves as a clearinghouse to 1) liaise with the workgroups to ensure an investigator is in compliance with international, federal, and local data access requirements, 2) provide a transparent infrastructure for requesting data access, and 3) communicate with Snellius administrators to ensure access is granted to the correct data sets.
The Data Access page provides detailed instructions for any PGC investigator with an approved secondary analysis proposal wishing to access individual-level genotype data.
Data Access Committee Chairs
Data Access Committee Liaisons
| Working Group | Liaison Name | |
|---|---|---|
| Alzheimer's Disease | Shahram Bahrami | pgc.dac.alz |
| Attention Deficit Hyperactivity Disorder (ADHD) | Marieke Klein | pgc.dac.add |
| Autism Spectrum Disorder (ASD) | Jakob Grove | pgc.dac.aut |
| Bipolar Disorder (BIP) | Niamh Mullins | pgc.dac.bip |
| Eating Disorders (ED) | Karen Mitchell | pgc.dac.ano |
| Major Depressive Disorder (MDD) | Brittany Mitchell | pgc.dac.mdd |
| Obsessive Compulsive Disorder (OCD) | Dirk Smit | pgc.dac.ocd |
| Post-traumatic Stress Disorder (PTSD) | Adam Maihofer | pgc.dac.pts |
| Schizophrenia (SCZ) | Georgia Panagiotaropoulou | pgc.dac.scz1 |
| Substance Use Disorders (SUD) | Raymond Walters | pgc.dac.sud |
| Suicide Working Group (SUI) | Marie Gaine | pgc.dac.sui |
| Tourette Syndrome (TS) | Jeremiah Scharf | pgc.dac.toc |